Sunday, April 19, 2009

A really hard post to write

From Haverly

Hi everyone,

This is a hard blog to write, but you've been with us every step of the way so we want to make sure that you know what's going on.  Bill says that when the doctors come looking for him he knows that is not a good sign and while it's rarely happened, on Saturday afternoon they came to seek him out.  

Basically Dad's condition has deteriorated to a point that it was time for me to come home.  Dad's nutritional state is very perilous, the bowel operation means that he is passing a ton of fluids and not absorbing the calories like they would like.  They began the IV feeding on Saturday as my mom mentioned.  The passing of so many fluids is also altering his blood chemistry which is making it very difficult for him to breathe.  He is now on the vent full time but he fights it and gets very agitated.  He was withdrawn, not interacting with the nurses, nervous when they came to do procedures to the point where they had to sedate him.

Bill called on Saturday night to let us know that we needed to come home.  I flew in this morning and met Bill, my Uncle Gary and Aunt Lori and Frazier and Cassi at the hospital so that we could all meet with the doctors and figure out what the next steps are.

Today we arrived to find Dad more awake and alert than he has been, resting more comfortably, interacting with the nurses more and seeming much better than when Bill saw him on Saturday.  I was able to clip his nails, comb his hair and even put some lotion on his hands.  We all visited with him some. Then he really started to struggle and actually ended up vomiting, which has not happened in all the time he's been in the hospital.  They had to clean him up and suction out his stomach and follow that up with a bronchoscopy to make sure that nothing had gone into his lungs.  He was sleeping when we left and has continued to sleep since we have checked in.  We don't know what caused him to vomit or if we will know.

So where does that leave us?  Unfortunately it is really hard to know.  He has to get out of the ICU, they cannot do anything more for him and he needs to be in a place where they know how to help him get better.  We're hopeful they will move him this week, but again it is just so hard to tell.  We are waiting for the phone call telling us that he is being moved.

We're at the point where we just don't know what tomorrow will bring.  We all want to be so optimistic and are trying, but we also have to be realistic.  His mental state is not good and we're just not sure how much more of this he can take.  I know so many of you check this blog religiously and there is no good way to give bad news on a website but it is the easiest way to reach everyone so I will continue to post even when its the hardest thing to do.  

We're still hoping and praying and know you are all doing the same.  For that we are so grateful.  So until the next up or down, we'll expect more of the same!

All the best
Haverly

21 comments:

Scott said...

Dear Haverly and all--

Thank you for continuing to be so sensitive to all those who are praying for you and for Dean--to keep us updated when you must be at the end of your rope.

What more can any of us say, but that we love Dean and we love you!

God Bless You,
Scott

Dan McGuire said...

Haverly and al,
You continue to be in our prayers. David and I think of Dean and all of you so often. We wish you well and peace and hope. We realize this is a very difficult time of waiting for an unknown outcome. Our thoughts are with you.
Love David and Dan in Naperville

sue said...

Dear


































Dear Haverly and all the family,

Thank you for the update and for your inspirational love, care and support for Dean Prayers, thoughts and hugs are coming your way for all of you and for Dean. Please take care of yourselves as well as Dean and know that you have an army of hope,
love and prayers supporting you all

love,

sue from florida..at this moment in Denver

Jayne Satter said...

Dear Haverly,

Thank you for continuing to communicate about Dean's process. It means so very much.

One of Dean's many gifts has been that of spinning a magical web of people who he has touched deeply. We love him and are holding him and all of you in our hearts.

Claire Hertz said...

Dear Haverly,

The post that was hard to write was also hard to read - our hearts go out to all of you.

We appreciate your thoughtfulness of taking time to write to us.

We care for Dean, and hope you can feel the love and support via the bloglines.

Joe, Claire and Elizabeth
Oregon

Janice said...

Dear Haverly and all Dean's Family,

Thank you so much for sharing this very difficult news with all of us. There is no great way to share bad news on a website, but this blog has become so much more, I've come to see it as something warm and personal - it's really been an open window into your day-to-day lives and your hearts.

My thoughts and prayers are with all of you today. I know you and his team of doctors and nurses are doing everything you can for Dean.

Sending love and hugs your way,

Janice

Taya said...

Hey Haverly...thanks for taking the time to focus on countless others who are watching from afar...

Holding you all close in my thoughts....and getting my email ready for Dean! My appointed timeframe isn't for a week or so...but I'm thiking about it!

Hugs and love,
Taya

Anonymous said...

Beloved Haverly and all,

Please know that I'm standing with you in thought and prayer. I'm so grateful that my colleague and friend, Dean, is enraptured in such amazing support. May the love that you share strengthen you and the peace that surpasses all understanding comfort each of you as you remain on the high watch with Dean. This is, indeed, a sacred moment...

Angela Kenyatta
Chicago

Anonymous said...

WE will keep praying for all of you ... Thinking of you during this time.

Michelle and Kent

Sarah Joblin said...

I just want to reiterate all that has been said here - your family's support of Dean and each other is extraordinary, and I am so grateful to you all for letting the rest of us supporters have a way to connect to everything that's happening there through this blog. You are all in my thoughts and my hopes. Sending you love and support from afar...

Sarah

Anonymous said...

We are always anxious to read of Uncle Dean's progress. And while it is hard to hear of the set backs, I'm sure it is more disheartening for you all who strive with the doctors and nurses to ease his pain, soothe his discomfort and encourage his progress. We love you all dearly and as our prayers for him continue daily, we will also lift you up as well. Much love -Corinne and Jim

Sue said...

Dear Haverly, Bill, Linda and the rest of Dean's support team,

Our hearts go out to all of you! We know that none of this has been easy and the reality of time is taking its toll on Dean and on you. Those of us on the periphery are grateful that you have been willing to share this difficult journey with the rest of us. It is a tribute to your love for Dean, and the extended family he helped to create.
Our thoughts and prayers are with all of you. Love :} Sue and Muriel

Bonnie said...

Dear Haverly and All,
Thank you so very much for keeping us posted on your Dad's condition. I can only imagine how difficult it is for you to share this discouraging news.
I continue to hope that Dean will be able to overcome these incredible challenges. I send my love and prayers. Please take care of yourselves.
Love,
Bonnie

Anonymous said...

Thank you again for the constant updates. God, hello! Dean needs some help here... You are all in my daily prayers.

David Jensen

Anonymous said...

Thinking of you all tonight.

Our thoughts are with you all

Michelle and Kent

Anonymous said...

John and I are thinking of Dean and all of you in this very difficult time. We love you all.

chuck

Anonymous said...

John and I have Dean and all of you constantly in our thoughts. We love you.

Chuck

Anonymous said...

Dear Haverly, you are right, our prayers are with you. Thank you for writing such a difficult message. Take care of yourself.

Anonymous said...

Haverly and all, we love Dean so much. Our prayers are so focused on you every day. Hang in there.
Love, Carla

Unknown said...

Haverly,
Thank you for the update. I cannot imagine how incredibly difficult this is for you. Dean is so lucky to have such a caring and truly supportive family.
Jen and Kevin

Kathy and Chip said...

God bless you all. This is such a difficult time for you and we continue our thoughts and prayers for all of you. Thank you for keeping us all so well informed. We think of you every day.....
Love,
Kathy and Chip